We didn't end up getting on the schedule for Sam's endoscope today (they were too busy), so we're on for noon tomorrow (Thursday). That's meant today was very uneventful.

Which means not a lot of new info. Sam is eating a tiny bit, drinking fine, sleeping more than usual. Something's definitely going on with his system, but could be several different things, so docs are trying to debug a little. 

Sam's symptoms are most correlated with upper GI graft v host disease (gvhd) -- a relatively common complication after transplant that's well treated by 4-8 weeks of steroids. But it's not a slam dunk diagnosis, so the GI folks really need to have a look around and pull some tissue to analyze to be more certain. (It could also be some sort of viral or bacterial infection, or possibly just a medium term effect of his pre-transplant chemo.)

We'll get an initial visual indication of things tomorrow after the procedure (which is under 10 minutes, aside from the anesthesia, prep, etc), but it'll take ~3ish days to get back the tissue analyses, so we're looking at Monday before we'll know much more. And then assuming we have a clear diagnosis & path of treatment, likely a few more days after that while they treat and monitor Sam's response. 

So. Earliest to get out of here would probably be Monday, but more realistically we're looking at next Wednesday or Thursday. [Slight potential logistical challenge on the horizon is that Zack & Kathy are heading to San Diego next Friday for a pretty serious soccer tournament, but I think all manageable.]

Sam's very disappointed with things -- mostly because the most likely course of treatment from here is steroids during June & July -- that's the med he's hated the most because it makes his face puffy, and he just feels not himself at all. And now it seems like it could be that way heading into the school year, so he's having a rough time with it.

It's been a rough week in that regard, and in not knowing what's really going on yet. And I think