Slow day

Monday, September 26, 2022 · by John Lilly
Sam's team has got his nausea mostly under control, seems like, at least since I got here after lunch -- so that's encouraging. The combo of meds is causing him to sleep pretty constantly, which under the circumstances is good, we think; after a tough night and not a lot of nutrition, not to mention the methotrexate itself, rest is a lot better than just about all of the alternatives. 

Hopefully he'll clear the rest of the methotrexate and feel better by tomorrow morning so we can get him home -- he will feel better there -- we all will.

It's an odd thing watching your 6+ foot son sleep. Makes me remember all the times we'd watch him sleep when he was so much smaller. There's a quiet closeness when your kids are sleeping that I think is just not like anything else, and I'm grateful for it. But it's also got a profound wrongness to it in this setting, for this reason. It's just hard not to be melancholy about it. 

But! Better days ahead. Hopefully this rest will start to compound, and we'll get home, and then start getting ready for Homecoming this weekend. 
♥ 23 hearts

5 comments

David Hornik · Monday, September 26, 2022
Better days ahead.
Jim Mack · Monday, September 26, 2022
A touching comment about parents watching their children sleep. A common bond amongst all parents, and even grandparents.. Get home soon!
Jamie Merkel · Monday, September 26, 2022
Melancholy…what an emotion. Better days are coming.
Andrew Korb · Monday, September 26, 2022
I used to check on Drew and Pearce several times a night. I was terrified of Crib Death (old name for SIDS). I did this long after there was any real risk, but it made me feel better. I would do it today if I could. So look forward to watching Sam sleep again, but in much better circumstances. Lots of love
Michelle Stewart · Monday, September 26, 2022
When being a parent looks so different than you imagined...sending love and hope. <3