Day 6: Mostly bored

Tuesday, April 4, 2023 · by John Lilly

Things are going well -- the medical team was amused yesterday when they asked how Sam was doing and I said "He's mostly bored."

The attending's reply: "That's kind of what we're shooting for."

And that's the situation. Sam's numbers looking good (no white blood cells engrafting yet and platelets & hemoglobin still low, all as expected), his activity level good (getting up to shower, game, do a little physical therapy each day), his mood good. No fevers so far. And now that he's off the benedryl, he's much less tired than he was.

The team is especially happy that Sam's continuing to eat food by mouth each day -- protein drinks & bananas -- and apples were the big exciting development yesterday. This is all important so that his digestive system keeps functioning as well as possible. 

Sam wants to eat more, actually -- he's started thinking about getting a burger in particular -- but his mouth & throat probably would object, and it all may still make him nauseous (he tried his favorite ramen Sunday, but couldn't stand the smell). Maybe next week.

Otherwise, sleep has been better without the monitors hooked up, and so the nights haven't been quite so long, and the days have been more positive.

Doc says we should expect to see signs of engraftment by the weekend, and it's possible that he'll get to go home a week after that. 

I expect we'll have some ups & downs between here & home, but going well. (It's even possible, although not 100% confirmed with his teacher, that he actually, finally, truly turned in his last math test yesterday -- a so-far elusive goal.)

Day by day, we'll see what today brings. We're now 16 days into this hospitalization, with 12 - 20 left. Winnable, as Sam says.

 

♥ 46 hearts

19 comments

Mike Beltzner · Tuesday, April 4, 2023
Tell Sam that if he invites me over I'll show him how to make smashburgers that are both simple and life changing.
Michelle Stewart · Tuesday, April 4, 2023
Winnable is a wonderful word!
J'Ann Schoonmaker Allen · Tuesday, April 4, 2023
Excellent news!
Blake Korb · Tuesday, April 4, 2023
My dad always says that boring is good -- love you guys
Cindy McLaughlin · Tuesday, April 4, 2023
I can't leave enough hearts on this post. Boring is so good.
Dana Lilly · Tuesday, April 4, 2023
This is great news!!! Glad Sam is able to eat more types of solid food, and, of course, bananas are still great! Being bored sounds like a normal teenager’s response. This is good!!! ❤️
John Lilly · Tuesday, April 4, 2023
This is really good! Bored is highly underrated. Go, Sam!
Chris Yeh · Tuesday, April 4, 2023
Boring is good! Let's hope for lots of boredom with the first excitement being when Sam goes home.
Paulo Correia · Tuesday, April 4, 2023
A winner is Sam! :) Winnable indeed!
Lisa Allie · Tuesday, April 4, 2023
That’s such good news. I’m so happy things are going well with minimal side effects!
Anabel Pearson · Tuesday, April 4, 2023
Sam is officially the best ambassador to the a dull and boring people!! You inspire me to welcome boredom as a step into my wellness! I keep telling myself I want a boring job!!
Jennifer McMurray · Tuesday, April 4, 2023
Love this update - boring is good!!! Hope it stays boring, other than the excitement of good engrafting news. Go team Sam!!
David Hornik · Tuesday, April 4, 2023
Mostly bored sounds awesome!
Ellen Levy · Tuesday, April 4, 2023
Totally winnable!!!
Bryan Rollins · Tuesday, April 4, 2023
Here's to more boredom in the weeks ahead!
Natalya Crump · Tuesday, April 4, 2023
Wow, amazing to possibly be >50% through the hospitalization already! Agreed, Sam, it all seems totally winnable.
Adriana Flores · Wednesday, April 5, 2023
Totally winnable :)
Jennifer White · Wednesday, April 5, 2023
Great news - so glad he can sleep more (and more comfortably), eat food, play games. It's amazing how what was once unconscious routine is a celebration. Here's to it all becoming routine again in the glow of good health. Love you all!
Suchi Sairam · Wednesday, April 5, 2023
#TeamSam loves to hear "boring" right now ❤️ Totally winnable, go Sam!