March 6, 2023: Long time, no update

Tuesday, March 7, 2023 · by kathy howe

All is well over here — never fear!  Our warrior has been hanging out with friends, hiking the Dish with Alec (BFF), playing chess with Zack, watching TV with me and John (last night it was Cooks vs. Cons — cons are not criminals, they are just lying about their status as a cook — we take bets on which of the 4 are the 2 cooks before they finish their first dish — fun times!)

I’ve been admiring (to myself quietly because…….teenager 😂) his hair and its darker color, the gold tones that were there before, and were in John’s hair too, are gone. And the signs of the waviness that it had before are coming back at a shorter hair cut level (before Covid he kept his hair low like it is now but the wavy wasn’t there — I love the wavy ❤️). No photos because…..teenager. Sigh.  He usually wears one of his 2 favorite beanies (from Jason Mamoa’s line — but don’t tell him I told you that because it’s “his beanie” 😂) so we don’t see the hair all that much.  And it will fall out again prior to his transplant 😞

He is finishing up the entire year’s worth of Pre-Calc this week and he’s 1/3rd through 2nd semester Physics Honors as of today. He’ll have a few more classes before his Bone Marrow Transplant (BMT) and then we’ll put a “hold” until May or whenever he feels good enough to start again. We are super grateful that we found Fusion Academy (thanks Sean and Jen!) as they’ve fit into his new academic journey in just the right way. 

He’s been getting some tests run, like I have, to get ready for the BMT so the schedule has been even busier than usual: last week was a CT scan, today (Monday 3/6) is a pulmonary test and EKG to get a baseline.

After having a week off from Blinatumomab, he was back in to LPCH for a routine observation (2 night stay started Thursday 3/2 — this is a requirement every time he starts a new round of blina: they monitor for cytokine storms and fever but he’s had no problems, thankfully).  He’ll have 2 more weeks of blina and then on 3/16 he’ll be finished.


On Sunday 3/19/23 he’ll be admitted to LPCH for the “conditioning” medicines and radiation that will eradicate his leukemia and immune system.

#FULeukemia 

3/29/23 he will get his transplant!!!  💪🏼💪🏼💪🏼💪🏼

Let’s go!

#TeamSam

♥ 37 hearts

16 comments

John Lilly · Tuesday, March 7, 2023
Go Kathy, Sam, John and Zack. You got this. Good luck with the rest of it!
Dana Lilly · Tuesday, March 7, 2023
Thanks for sharing. Looks like everything is according to schedule. You got this 💪. Sending lots of love and hugs ❤️
Blake Korb · Tuesday, March 7, 2023
Thanks for the update! Exciting news about the upcoming transplant <3
Sean White · Tuesday, March 7, 2023
Yay Team Sam!!!
Sarah Piel · Tuesday, March 7, 2023
Wow. Wow. Go Team Sam!!! I’m
so glad you found Fusion. My daughter used it for a year while she was on medical leave.
kathy howe · Tuesday, March 7, 2023
Oh wow! That’s great! I’m so glad she found it too! ❤️
Dawn Robertson · Tuesday, March 7, 2023
Go Sam go! Very impressed with the pre-calc cramming.
Anabel Pearson · Tuesday, March 7, 2023
Incredible progress! Well done team Sam ! Hoping for some more super human powers to the whole family!! Praying for your little man!
Michelle Stewart · Tuesday, March 7, 2023
I love the regular old things he/y'all are doing! Thanks for the update. I think about y'all all of the time! <3
Jean Brady · Tuesday, March 7, 2023
Blessings and hugs.❤️ Go Sam!
Rebecca Sheddrick · Tuesday, March 7, 2023
We have fun betting on cooks vs cons too!
kathy howe · Tuesday, March 7, 2023
I love this! Y’all are my Forged in Fire buddies too ❤️
David Hornik · Tuesday, March 7, 2023
I kind of like the idea that Sam will be conditioned like my car battery in advance of charging. I look forward to Sam getting fully charged!
Allie Lawler · Tuesday, March 7, 2023
Thanks for the update! We were thinking of you all lately. ❤️
Suchi Sairam · Wednesday, March 8, 2023
Thinking of all of you every day. You'll hear lots of cheers coming your way on 3/29! ❤️ #TeamSam
shelley watanabe · Wednesday, March 8, 2023
Love and positivity your way.