Day -9: Not a slow start

Tuesday, March 21, 2023 · by John Lilly
The good news is that Sam's first day went as everyone expected it would.

The challenging news is that radiation therapy is rough. Sam doesn't complain much, but did have some opinions about today. With 2 sessions of radiation and now starting on a drug called ATG that will kill most of his T-cells by tomorrow, his body is definitely reacting strongly. He's pretty nauseous, and very tired. But we're trying to conceptualize, as much as we can, that this is all killing whatever cancer remains in his body. 

Kathy's there with him now, and reports that he's quieter after a few rough hours. Hoping they both get some sleep tonight; back for another round of radiation in the morning, and Kathy's first session of apheresis. 

Difficult, but progress.
♥ 39 hearts

13 comments

David Hornik · Tuesday, March 21, 2023
Will it help if he pictures himself puking cancer out of his body? Probably not much, I’m guessing. But that still feels like progress 🤮🤮
kathy howe · Tuesday, March 21, 2023
He was understandably pretty beat up today and I said “this is your strong body telling the leukemia to fuck off forever! Fuck you Leukemia!!! “ Less graphic than yours — I like yours 😊
Gowri G · Tuesday, March 21, 2023
❤️❤️
Liz O'Donoghue · Tuesday, March 21, 2023
Sending lots and lots of love-
Claudia Hung · Tuesday, March 21, 2023
You got this, Sam and Kathy! ❤️❤️❤️
Allie Lawler · Tuesday, March 21, 2023
Such a warrior! You got this, Sam! ❤️
Anabel Pearson · Tuesday, March 21, 2023
Strength comes in moments you think you can’t go on but keep on going anyways! I can only image how strong Sam has become! Kid has grit ! Send him our love and support !
Dana Lilly · Tuesday, March 21, 2023
Hang in there, Sam. Sending lots of love and hugs ❤️ ❤️❤️
Andrew Korb · Tuesday, March 21, 2023
Lots of love to all of you. Thinking about you all!
Scott Kleper · Tuesday, March 21, 2023
Thank you for keeping us updated through the good and the challenging. Hang in there, Sam and Fam!
Michelle Stewart · Tuesday, March 21, 2023
Love y'all. Praying for strength at home, too.
Palon Shuster · Tuesday, March 21, 2023
So wish the path to the cure was easier on him. Hugs to all of you.
Jim Mack · Wednesday, March 22, 2023
Wish the path was easier