Christmas Eve 2022

Sunday, December 25, 2022 · by John Lilly

So we are home from the hospital, have played our now traditional games of Mario Kart, and both boys are nestled, if not yet asleep. Zack will undoubtedly sneak out of his room around 4a to check on his stocking & see what Santa has brought for him. Just as undoubtedly, Sam will hold to his promise to sleep in until 8a. What those 4 hours of in between time will bring, who knows? We'll find out!!

But that's Christmas pretty much as per usual for our family, and we are grateful, grateful, grateful to experience it.

As happy as we are to be all together, I wanted to post about something else.  As difficult as this year has been for us, there have been some miraculous gifts. The most obvious one is that we can now see better whole populations of people who we were maybe blind to before. (Me more than Kathy, who's always been in tune with this stuff, but both of us have gotten quite an experiential education, and it's a genuine gift.)

One of the families we saw on the stem cell ward today was a young couple with two little girls -- maybe 2 or 3 years old. One of the little girls was hooked up to an infusion like Sam's that her dad was carting around for her. The other was tagging along. They wanted to talk to me a little bit because I was wandering around wearing my Buddy the Elf outfit. They'll be on the ward until probably Tuesday, although like we've learned, any questions on when something will happen can only be answered tentatively, like a little prayer to the future. 

Anyhow, Tuesday is the plan. They're from Modesto, 90 miles away, so they've been living in the Ronald McDonald House. And their 2022 Christmas will be spent shuttling back and forth between where one of them sleeps with one of their daughters and the hospital, where the other 2 sleep. Still, they're grateful, and hopeful.

So for me this Christmas, I'm holding space to think of them, and their Christmas day, and their road ahead.

And for the nurses who were bringing in a cooler containing stem cells for a boy on the ward. And for the boy himself who's spending this Christmas building a brand new, strong, healthy immune system. And for the stem cell donor who was there with him too.

And also: the countless caregivers who are taking care of these few and so many more. The scientists, and the doctors, and the pharmacists, and the nurses, and the social workers, and on and on and on.

We live in an age of miracles. Curing kids with cancer! Creating whole new immune systems from stem cells! And so many more.

Miracles created by the labor and love of so many people, for the benefit of so many others. Christmas always feels like a miracle to me, every year. And now that we're able to glimpse a little bit of so many of these populations, it feels more miraculous to me than ever.

And now to bed. I really, really wasn't joking about 4a, and if I'm honest about it, that's the absolute best case. That kid is in it to win it, every single time.

Merry Christmas, everyone, and thank you. 

♥ 42 hearts

12 comments

eve blossom · Sunday, December 25, 2022
And thank you for sharing this on this Christmas Eve so we can see and think about this population as well and the miracles of science, love and family. Merry Christmas.
Jim Mack · Sunday, December 25, 2022
Thank you John for this Christmas message of courage and strength.
Merry Christmas to you, Kathy, Sam and Zach
Alan Korb · Sunday, December 25, 2022
In it to win it. Yes.
Joe Beninato · Sunday, December 25, 2022
Love the thoughts, John. Savor the moments together. Merry Christmas to all of you! And where are the photos of Buddy the Elf??? 😉
Liz O'Donoghue · Sunday, December 25, 2022
John- beautiful. Thank you for this Christmas message. ❤️
Chris Yeh · Sunday, December 25, 2022
Merry Christmas! It is inspiring to think of all the people who do so much to help these children.
hunter walk · Sunday, December 25, 2022
Love you all so much
J'Ann Schoonmaker Allen · Sunday, December 25, 2022
Thinking of you with much, much love from all the Allens.
Andrew Korb · Sunday, December 25, 2022
Lots of love from Andy and Susan. Special shout out to Buddy the Elf!
Frederic GARDERES · Monday, December 26, 2022
Merry Christmas to you and your family, John.
Thanks for your words reminding us to keep others in our hearts and thoughts. We sometimes forget…
Christopher Schroeder · Monday, December 26, 2022
A beautiful post yet again and a reminder of the miracles around us and those we can create. As you do every day. Sending much love this holiday season.
Jennifer White · Wednesday, December 28, 2022
What a beautiful post. Thank you and bless you all.