March 21, 2023: Apheresis part 1

Wednesday, March 22, 2023 · by kathy howe

This morning was very busy as I walked over with Sam to his radiation appointment at 7:15-7:30 am, waited for him to get settled, and then headed off to the apheresis lab, which thankfully was just 2 flights up.  And Nurse Katie, from Radiation, did me a solid by getting me a breakfast sandwich and delivering it 👊🏼. 


My tiny veins were in great hands with Nurse Wally. He is an exceptional nurse! He accessed my right arm at my elbow and then returned the blood to my left arm through a large vein near my wrist.  I could move my left arm through the 4.5 hours but my right had to stay still. 

I also learned that my 15+ year commitment to hydrating daily stood me and my tiny veins in good stead too: tiny veins that aren’t well-hydrated tend to “disappear” and that makes it harder for the apheresis machine.  Tiny, well-hydrated veins get the job done!

I watched Everything, Everywhere, all at Once which was extraordinary. If you havent watched it, you should.

During the 4.5 hours, the machine processed 14 L of blood and isolated 322 ml of leukocytes. At 12:30 pm, Cat, the scientist who is going to process my leukocytes to isolate just the t-cells, arrived.  She was a bit early as Dr. Klein had requested and additional half hour to get a few more mls.  Wally told me that it is a requirement of the clinical trial that the scientist transports the donation her/himself to the lab: no intermediaries are allowed. 

These t-cells are the ones that will “teach” Sam’s t-cells to not react (in a Petri dish) and then he will get a “boost” of them on Day 35 post transplant (the “T-Allo10” clinical trial).  

after the apheresis, I had a pretty decent headache but it was gone by 6 pm or so.

Thursday I start my GCSF shots (1/day for 5 days) to get my bone marrow to overproduce stem cells.  Apheresis #2 to remove the stem cells will be Monday 3/27/23. 💪🏼

#FULeukemia

#TeamSamStrong

♥ 42 hearts

22 comments

Bryan Rollins · Wednesday, March 22, 2023
Kathy, what an incredible day. 14 Liters!! Almost 4 gallons. Your veins are now heroes. Donors are the coolest people on the planet. As is the whole Lilly family.
Jim Mack · Wednesday, March 22, 2023
The science behind this whole process is mind blowing. Truly miraculous. Thanks for sharing this story of your gift of life.
Blake Korb · Wednesday, March 22, 2023
You are amazing, Kathy!
John Lilly · Wednesday, March 22, 2023
This is an amazing thing and we’re so glad you can do it for Sam, Kathy. And thanks for the movie recommendation. Hats off to you and Sam.
Jessi Hempel · Wednesday, March 22, 2023
What incredible strength!
Erin Lavik · Wednesday, March 22, 2023
You are amazing
Andrew Korb · Wednesday, March 22, 2023
Amazing just for watching "Everywhere, Everything All at Once" all the way to the end. Respect!
David Hornik · Wednesday, March 22, 2023
❤️
Dana Lilly · Wednesday, March 22, 2023
Amazing ❤️❤️❤️
Michelle Stewart · Wednesday, March 22, 2023
One more step on your journey - so proud of you!!
Anabel Pearson · Wednesday, March 22, 2023
Your motherhood devotion is inspiring ! You’re a rockstar ! Say hello to Sam !!
Liz O'Donoghue · Wednesday, March 22, 2023
I’m in awe - of you, the technology and so much kindness, from everyone, everywhere and all at once. ❤️
Dawn Robertson · Wednesday, March 22, 2023
14 liters! Amazing, Kathy!!!
Erik Norton · Wednesday, March 22, 2023
Howe! You are such an inspiration! 💜💜💜💜
L Robertson · Wednesday, March 22, 2023
Go Mama!! (Tiny but MIGHTY veins)
Natalya Crump · Wednesday, March 22, 2023
Yay! Glad to hear all went well and successfully. Kathy, you rock!
Vadim Axelrod · Wednesday, March 22, 2023
Wow - you're awesome, Kathy!
Erica Hinton · Wednesday, March 22, 2023
Amazing! So glad it went well.
Palon Shuster · Wednesday, March 22, 2023
Great way to pass the time while hooked up to the machine. I had hoped you could do it like the blood bank version where it's one armed. Much easier than the old 2 armed machines.
Cindy McLaughlin · Thursday, March 23, 2023
The love in that blood is strong. <3
Paulo Correia · Thursday, March 23, 2023
Neighbor! :) You rock! Carry on.
Sean White · Thursday, March 23, 2023
You're amazing, Kathy!