Good weekend, maybe last in the hospital?

Monday, April 10, 2023 · by John Lilly

Everything is going well.  Sam's white blood cell count continues to rise, and today was the first day we saw neutrophils -- the most abundant type of white blood cells, and the main ones that help fight infection. Sam's ANC (absolute neutrophil count) was 270, up from zero the past couple of weeks -- when it gets to 500 (I think likely tomorrow morning) they consider the stem cells engrafted, and a 72 hour clock starts ticking until they're comfortable letting Sam come home. A few other things to sort out between now & then, but I think we're looking at +/- Friday.

Docs have been very positive on Sam's trajectory in all ways. He persisted through the conditioning, he's been eating something every day, and he gets out of bed and moves around each day as well (to move to his PC to play Overwatch, mostly, but also to shower, etc). 

We're not out of the woods yet in terms of complications, etc, but so far we are on just about the ideal curve.

More important than whether we get home on Friday or Sunday or even a week from now, though: Sam is starting to describe himself as "healthy" in various conversations. Such a crucial corner to turn.

We don't know what the future will bring in terms of GvH or relapse, or anything else life throws at Sam.

But for now at least, for the first time in nearly a year, Sam (and all of us) have the feeling that he's healthy, and on a path that he wants.

♥ 45 hearts

19 comments

Bryan Rollins · Monday, April 10, 2023
Healthy. That's pretty great. Just that one word is enough.
kathy howe · Monday, April 10, 2023
#truth
L Robertson · Monday, April 10, 2023
Cue the marching band. 🎺🎺. Go Sam!!
Blake Korb · Monday, April 10, 2023
This is such great news! So proud of you all but especially Sam <3
Chris Yeh · Monday, April 10, 2023
Fantastic, keeping my fingers crossed that Sam's new immune system keeps kicking ass.
Cindy McLaughlin · Monday, April 10, 2023
Go Sam!!!! <3 <3
Adam Nash · Monday, April 10, 2023
Such great news! 💗
Jim Mack · Monday, April 10, 2023
Wow…..:healthy……!!!!!
Steph Hannon · Monday, April 10, 2023
Amazing. Sam's language turning a corner is a massive milestone.
David Hornik · Monday, April 10, 2023
So lovely to read! ❤️
John Lilly · Monday, April 10, 2023
This is the kind of news we’ve been waiting and praying for. Fingers crossed for continued progress. Healthy is such a powerful word.
Dana Lilly · Monday, April 10, 2023
This is wonderful news!!! Healthy sounds so great!!! Fingers and toes still double crossed for even more GOOD news this week ❤️
Andrew Korb · Monday, April 10, 2023
Great news, so thankful. The reporting is very much appreciated. Lots of love to you all.
Anabel Pearson · Monday, April 10, 2023
So excited for Sam’s progress this week ! Miracles happening !! Wishing the best for Sam and family!! Keep on visualizing the exit of a longish hospital stay!!
Gowri G · Monday, April 10, 2023
Thanks for sharing this journey. So happy for this milestone.
Elizabeth Gomez · Monday, April 10, 2023
Marvelous news!
Palon Shuster · Monday, April 10, 2023
This feels wonderful to hear!
Suchi Sairam · Monday, April 10, 2023
This is such incredible news. ❤️❤️❤️ "Sam" and "healthy" in the sentence is just 🥳 Everything crossed that it continues on this path.
Helen Yeni-Komshian · Tuesday, April 11, 2023
❤️❤️❤️❤️